Wednesday, January 23, 2013

Wildflowers and Weeds


A weed is but an unloved flower. ~ Ella Wheeler Wilcox

Wildflowers and weeds, they seem to be almost impervious. Their ability to grow anywhere and everywhere is quite amazing. Our tolerance of them is entirely individual. Do you dedicate a space and allow them to do their own thing and to attract the necessary pollinators to your garden or do you constantly try to eradicate them? I'll never forget purchasing a really pretty Lyreleaf Sage in my earlier days of gardening called Salvia lyrata and having my good friend very quickly inform me that the plant's common name was roadside or wild sage. Yes, you can find it growing wild just about anywhere. Is a weed simply a plant growing somewhere that you don't want it to grow?


I once watched a video of two guys exploring the depths of the Congaree National Swamp. A place that I would probably never want to get to physically. (Snakes and mud are really not my thing.) I loved just watching the video, although some people that I know with disabilities would enjoy taking part in that kind of adventure. The Congaree National Park has a wonderful 2-mile long and very accessible boardwalk. I'm not certain to what extent of access that the park's other trails provide, and these two guys were definitely not on any trails. The video allowed me to see even more of the swamp. I've suggested this type of added accommodation often especially to historical structures where physical access may be truly difficult. i.e. a historical ship where certain areas other than the main ones are not feasibly passable to anyone with any type of mobility disability, a lighthouse or to the various floors of a Nationally Registered Historical House Museum (Most are obligated to provide access from accessible parking to at least the first floor, bathroom and gift shop.)


When I was younger, I would do everything in my power to avoid attracting any type of negative attention or to be perceived as one of those angry, negative people with a disability whose life would be unbearable to have to live. I have had a really good life in an environment that would often defeat many. I now know much sooner when I am apparently wasting my time. I will make suggestions to anyone willing to hear me and who legitimately wants to make improvements. It's simply wonderful when they want to do it because "it is the right thing to do!" It's up to them to implement any change. I have to laugh, and laugh often. I know that there are certain things that I can't laugh about. I do find myself quite frequently shaking my head in disbelief and asking myself, "What were they thinking?"


Years ago, I would also do everything in my power to not be perceived as disabled, everything except wearing pantyhose and 4 inch high heels. (I never liked them to begin with.) I drove a sporty car, dismantled my wheelchair 6 or more times a day, and without help because I could. I would go to the beach and crawl across the sand to go for a swim. I was young, and unstoppable! Kind of like Bermudagrass, although I'd rather be perceived as more of a wildflower like Rudbeckia. My husband would not hesitate to pull me up and down steps to visit gardens that I would otherwise miss out on. He too is getting older, and he can no longer do that physically. (He's had three hernias.)


INDEPENDENCE is what it is all about, and maintaining as much as possible for as long as we can. One of my neighbor’s last week took his own life. He had been living with Parkinson's Disease for a number of years and this past year he had been forced to use a wheelchair. Sadly, some people would rather end their own lives if they have to live their lives incapacitated in any way. I, fortunately, do not share this attitude. I will be the old lady teaching others how to do wheelies!


I reflect on this because it is important. I’m not going to say that that attitude is right or wrong. It’s all relative to other things, pain as well, and I’m not in a position to judge. I’ve always felt that dealing with the sudden loss of independence as an older adult would quite possibly be more difficult for a person to deal with. Although, there have been a few really awesome, older folks who have inspired me along the way and many of whom I’ve had the pleasure of assisting with maintaining a quality life. Many are truly appreciative for the life they have left.


When I encounter an entity, business, person or organization that would rather ignore any obligation to provide or enforce equal access, I see it as if they have the attitude that a person with a disability isn’t a person worth accommodating. After all, if they valued us as human beings, they would do everything possible to include us, right? Wow, it all makes sense! The American's with Disabilities Act (ADA) isn't just a building code, it's often overlooked as the Civil Right that it is.


As harsh as this may sound, it can often seem like the reality. Whether a person goes to a large retail outlet or to a small mom and pop restaurant, the obligation to provide equal access to goods and services is there. Until people can realize that it is flat out dangerous for a person to park in a narrow, non-compliant parking space, things are not going to change. I have come too close to getting hit too many times. Most people with disabilities will avoid going to any place that they can't travel to safely. No one wants to endure a dangerous sidewalk or to be forced to travel down the middle of the street. This is an ongoing and very legitimate safety concern. No one should have to endanger themselves either by having to pull or carry someone with a disability.


In the mean time, I will pick and choose where I go. Even if I have to drive to another county to experience a botanical garden that I can easily enjoy with accessible routes and pathways. I will continue to grow my own veggies and tend to my own garden as long as I can, because this is what makes me happy. Life is too short not to be enjoyed. I will also continue acting sometimes as a persistent weed, although I may wheel away occasionally to give people time to react, because I truly care about other people having the opportunity to live an independent and meaningful life. I am inspired by those with so much less than me, and I see their lives as worthwhile. No one should be excluded or treated in anyway that is less than first class. It is my hope that this next generation, wouldn't have it any other way!









Thursday, December 13, 2012

Twenty-nine, Again!

Twenty-nine, again! December 13, 2012


“Only the Good Die Young.” ~ Billy Joel

Not everyone has the opportunity to celebrate two 29th birthdays. The only difference with my second one is that my father’s furrowed brow is now staring back at me in the mirror. Most people that I have encountered, who have experienced a traumatic Spinal Cord Injury, can remember quite well the day and quite possibly the exact moment of the onset of their paralysis, no matter if their spinal cord was completely or incompletely severed. The anniversary of this date is generally celebrated as a second birthday to celebrate the second chance of life. We lived.


I maintained consciousness throughout my car accident. I can quite vividly remember seeing the sign indicating the winding road ahead, feeling the out of control spinning of the car on the icy road, seeing the telephone pole the moment before the actual impact, looking at my legs draped over the seat in front of me after the collision with the pole, and watching quite intently the very concerned face of a nurse that held my neck until the paramedics arrived. She was my angel that morning in December back in 1983. There is no doubt in my mind that because of her great care, my spinal cord was not completely severed at the cervical level of C 5/6 and why I have movement and feeling throughout my body. I can contribute my incomplete paralysis and resulting independence to her and to a lot of hard work.


The only thing on that day that I can’t remember is what happened to the cup of coffee that I was holding? (I wasn’t driving.) Seriously though, I do think about that sometimes. Technology today has allowed me to use google maps and travel down the actual road and find the exact spot where the ice had accumulated on the road. I virtually revisit that site occasionally and it gives me a better understanding as to why we see grave markings along our highways.


Last night I caught the last part of an HBO concert that was a fundraiser for the victims of Hurricane Sandy. I was thrilled to see that Billy Joel still had what it took to belt out his songs and to play great music on his piano. Unlike other performers before him, he did not come across as an old man trying to relive his good ole rock and roll days. His shirt remained buttoned, and he sang with his usual grace. His song, “Only the Good Die Young” reminded me of a joke used back in rehab. We had all jokingly concluded that we hadn’t died because we just weren’t good enough. Grin.


There were about 28 of us on F5 at Boston University Hospital at Christmas, and most of us were in our twenties. Sadly, many have probably passed away since then, but I will never know who for certain. Over the years since then, I’ve only managed to keep up with one very special friend.


We have all moved forward with our lives. We have all had to deal with all of life’s aches and pains. Our disabilities didn’t exempt us from dealing with the usual onslaught of real life issues. Today, and every day, I am indeed grateful for life.


It wasn’t until years after my accident that I had had the epiphany of how close to death that I actually was. It wasn’t until I became a parent that I realized how much my parents went through emotionally with my injury and with my brother’s unexpected death a few years later. As a parent, some things remain unthinkable, especially when it pertains to your only son who is serving in the US military.


Christmastime can be either painful or happy. We can either dwell on the life that has been lost, or appreciate the life that we have been given. We can isolate ourselves, or we can reach out and volunteer and do something worthwhile. We can donate food and blankets to those in need. We can live. We can share pretty 'feel good' flowers on facebook. We can focus on positive energy and on doing the things that basically make us feel good. It’s okay for all of us to remember, if we are old enough to, our lives before. It is from those many experiences that we grow up and try to do remarkable things. Sometimes we all need a little kick in the butt.


There was another worthy quote that I read this week regarding being able to see what is right in front of us. It’s all there; we just have to be able to want to see it. It wasn’t until yesterday that I realized that Magnolia Plantation and Gardens, with over one thousand cultivars of Camellias, had one of the most extensive collections of Camellias in the world. Amazing beauty!

'If you can't find something worthy to photograph within forty feet of where you stand, you are not seeing.' -Ruth Bernhard.


My last visit to Magnolia Gardens was incredibly frustrating because the accessibility was horrible. They had used large white stones on their pathways and their trails were nearly impossible for me to navigate with my wheelchair. It is now my mission to find out if things have improved. There are just too many beautiful Camellias there that I truly want to see!

©Susan Richards, with permission

If I go awhile without writing, it’s because I know I write a lot. It’s not because I feel I don't have anything to say. That’s generally not a problem for me. Sometimes, I simply do not write because I honestly just don’t want to say it. Writing means feeling. Some feelings are better left unsaid, at least for a little while.


A good friend asked me very recently why I didn’t ‘pop’ a newly opened entity for non-compliance with accessibility. My response, was because I liked the person who owned it and that I enjoyed eating there. Stomach before access, I guess that makes me a bigot. The truth is that the entity that was originally there should have never received their certifications that allowed them to operate as a business in the first place. They were built after 1990.Their accessible parking spaces and curb ramps never met the state code that was applicable then, never mind compliance with federal code.


My opinion is that the new business should have been required to bring the parking lot and ramps to code before they opened their doors for business. They’ve been informed, now I’m just waiting for a response. This shouldn’t be my personal responsibility or anyone’s with a disability. It gets very old, especially when you just want to go somewhere to eat a good meal. The press could bring them some unwanted media attention, and someone could quite easily come along and ‘pop’ them. They would certainly be within their legal rights to do so. I, in all actuality, detest conflict and would rather mediate everything.


I encounter this type of scenario entirely way too frequently. I 'huff and puff' occasionally, but I rarely blow anyone’s house down. I very easily could, and maybe that’s what intimidates some people. I know my civil rights and I know that what I achieve with accessibility will ultimately make life better for a lot of people, even for the aging ‘old farts’ that opposed my efforts over twenty years ago. (I can say that because I am quickly becoming older too.)


My survival is to do what makes me happiest.I simply refuse to allow ignorance or someone's lack of compassion to affect me otherwise. Life is too precious. Somehow, I think that my love of life is reflected in my flower pictures. My flowers are quite expressive. Sometimes, I can feel them flapping in the wind as if they’re dancing. As a relatively new photographer who loves gardening, I’m intrigued by the natural beauty of all plants. They make me smile, and sometimes they may actually make me say ‘wow’. They simply make me feel good, and to be able to share them with others makes me feel great!





Monday, November 19, 2012

Plink, Plunk of Falling Acorns

Acorns and Other Dangers in the Hood


"If you stand for a reason, be prepared to stand like a tree. If you fall onto the ground, fall like seed that grows back to fight again." ~ Author unknown

Plink, plunk! It’s that time of year when small projectiles known as acorns come plummeting down to the earth and onto my back deck, making life a real challenge. Acorns present a real hazard to anyone who may have any type of mobility impairment. I’ve hit them at full speed in my wheelchair and have come to a screeching halt before. I laugh, but I know that there is always the possibility of kissing the deck. It happens. In our lives, dangers are present everywhere.


It is rather alarming to be asked to evacuate your home immediately or to look out of your window and see an armored SWAT team of police officers. During that moment of not knowing if you are in imminent danger, one is most frightened. Regardless of your faith, panic sets in.


Car accidents are similar. If you can see it coming, there is a moment before the impact as if time is seemingly passing in slow motion, time spent not knowing if you are going to live or die. I can only guess that it must be the same for anyone sinking on a ship or plummeting to the ground in an airplane.


I never lost consciousness after my car accident, and somehow I maintained the belief that I would be okay, even when I could clearly see my motionless limbs still partially draped over the seat in front of me. The thought of death was brief, my goal was survival. I thought that I was going to be okay. I guess that is what one would call faith.


We all need to feel a sense of control. To trust that things are being handled properly and to maintain a belief that everything is going to be alright is difficult for anyone. Sometimes we simply have to trust the people who are suppose to be taking care of us, as we would trust a pilot to get us to our destination safely. That’s what their job is. This doesn't mean that they're not going to be questioned, but during an emergency you usually have to let them do what they do.


Last Thursday night I looked out of my window and police cars and heavily armed police officers were everywhere in my suburban neighborhood. I was alone and no one knocked on my door to tell me what was going on. No emergency alerts or text messages were issued. I didn’t dare go outside. My instinct was to call a neighbor, and she had no idea either. We could see cars stopped and other neighbors being escorted out of their homes. The only thing that I could surmise was that this was a serious situation. My speculation was that something must be happening down at a house where several domestic disturbances had occurred previously.


My husband was on his way home from work, and was originally prohibited from entering our street. Eventually, he convinced an officer that he needed to get home to be with his 'disabled' wife. Yes, he played the ‘gimp card’ on my behalf. He was told that there was someone armed at a residence at the end of the cul-de-sac where I had assumed things were happening. We were advised to stay away from our windows. Later, we heard a gunshot. An ambulance came and went, and after that, everything seemed to settle down.


It wasn’t until the next day that we heard that there was someone armed in the house with both a gun and a knife, and who was apparently suicidal and had taken the others in the house hostage. No one was injured, and the gunshot was a misfire from one of the police officer’s gun. Our assumptions were indeed correct and it was the estranged wife who we had seen months before escorted away in a police car. I’m thankful that things did not end badly for anyone. You simply never know about life, even in a somewhat calm and ordinary suburban neighborhood.


Communication amongst officials and neighbors is important in situations like this. Staying out of harm’s way is also a must. I believe that it would have been helpful if someone had knocked on my door when I was alone and had assured me that I was in fact safe. Even a security alert by the town or by our Homeowner’s Association would have been helpful. The situation was indeed unnerving, and the very close sound of the gunshot didn’t help.



I personally do not know the exact detail of my neighbor’s mental health, but I do know that with the approaching holidays many people have a difficult time. Please be in tune with your loved ones, friends and check on those who are alone. For me this time of year brings back many sad memories too. Please ask for help if you yourself think you may be dealing with depression. In life, we have to take care of both our mind and body.


For many of us our activities are slowing down in the garden. I am fortunate enough to have spinach and lettuce growing. I learned my lesson about expecting to find fall vegetable plants available at our local garden centers. There was only lettuce and swiss chard. I should have started more seeds, but honestly, it was too hot in August to even want to think about gardening. I had a lot to do just keeping everything watered. I know that more selection will be available fairly soon after the Christmas trees are gone in time for a spring garden.


Gardening is a fabulous way to keep our minds occupied even throughout the winter months. I love plowing through numerous gardening magazines, books and online articles in preparation for next year’s garden. I have been inspired by a friend to try growing some micro-greens. They are very high in nutrients.


As Thanksgiving approaches this week, I work hard at trying to stay upbeat. I am so thankful for everything in my life, that I refuse to let the trivial things upset me. Last week I learned that the White House Kitchen Garden created by school children for nutritional and educational purposes was probably not accessible. I’m still trying to confirm this very possible and appalling fact. The garden’s original intent was for it to be developed and maintain by school children and by people with disabilities. Sad, if it is indeed not accessible.



I’m one who likes to think that they are in control of their life. We all know that isn’t always possible. I always said that I would choke the next person who told me that “God only gives you what he knows you can handle!” Enough already! (Sorry, Joni Erickson.) I have faith, I just question it frequently. Time to pull out some good gardening books!


Please have a very Happy Thanksgiving and watch out for those falling acorns!






Friday, November 2, 2012

Clear as Mud

Clear as Mud

Walker's Creek, Georgianna Brush

“Muddy water, let stand - becomes clear” ~ Lao Tzu

Is anything really clear these days? For every good argument, there seems to be a good opposing one. We all seem to agree that we’re living in a world of information overload. The internet has provided us with a wealth of information on everything, and it can be totally confusing for anyone at times. It can also be very wrong and misleading. Probably all social media users will have the lasting memory of the fake images of sharks swimming in the flooded New Jersey Coastal neighborhoods after the recent ‘Superstorm Sandy’.


When it comes to eating healthy, there is not a shortage of information either. If you are like me, you can remember buying an apple and eating it without great apprehension. “An apple a day, keeps the doctor away,” remember? You simply would give it a quick rinse with water or give it a quick wipe with your shirt and proceed to crunch away. After all, apples are natural and good for you, right?


A few years back I remember getting an order of chicken wings for dinner from a popular chain restaurant. (I eat meat, although quite sparingly, but I feel that it is my choice to do so. I also have many friends that do not.) Anyway, the little wings were huge. I remember thinking, “Wow, why are these so big?” At the time, I chose not to question things any further, but I’ll never forget.

foodinc2.png

As a person who is very inquisitive by nature, I have found that as I age, I am not as inhibited from asking the questions that I feel are necessary to obtain what I feel to be somewhat logical answers. That is simply me. As a gardener, I have found myself asking more questions about the food that I grow or buy to consume. Before beginning Access to the Garden, I never even thought about the concept of eating ‘whole foods’. I never made the correlation, but personally I think that the closer something is to its original source, the better it is for us.


My philosophy has always been that too much of a good thing will kill you. I also agree with the warning that if you can’t pronounce an ingredient, that it probably isn’t good for you either. Again, these are my personal choices. That doesn’t mean that I’m not going to drink a soda occasionally or consume a funnel cake at the county fair. It simply means that I am choosing to make healthier choices regarding what I put into my body. Less CRAP as the poster says. I actually drank a green juice smoothie recently. (I’m not worried about oxalates.)


We live in a world where knowing that the label "Natural and Wholesome,” does not necessarily signify what’s actually the healthiest for us. The dairy product or meat may actually contain added hormones or antibiotics used for enhanced growth and production. "Natural flavors" are created in laboratories. “Fresh and Ready to Eat” may not actually mean that the fruit or produce is washed in a manner that removes the pesticides, and “Organic” may actually contain Genetically Modified Organisms (GMO’s) or Genetically Engineered Organisms (GEO’s). To receive an "organic" certification, only 95% of the product is required to be grown organically and 5% can be non-organic or synthetic. "No MSG" can also be deceptive if the product contains other ingredients where MSG is naturally occurring. These are just a few of many examples of what’s happening.


Take it a step further and we learn that retailers have become quite clever by changing the actual serving size to depict fewer calories and zero Trans Fats. Reading a label and understanding the ingredients has become a mystery for any conscientious consumer. To whatever extent that this is all considered good or bad is our own personal perspective. When I spend extra money for produce or cereal that is supposedly organic, personally, I expect it to be. When I read that a ketchup company replaces a sweetener with a GMO beet juice, I'm disappointed.


This week on Access to the Garden I discussed the use of galvanized trough containers as raised vegetable beds. They’re a good height and depth. One issue that was discussed was the "zinc flake-off effect". This is something that I honestly had never considered before. I had automatically assumed that since they were normally used for animal feed and water, that they would be considered safe to use for growing vegetables for human consumption. The discussion and resources were actually quite helpful and there appear to be ways to possibly minimize the potential leaching when they’re used for growing vegetables. The potential for excessive heat build-up in the containers was another issue that can apparently be minimized with the use of bubble-wrap and a plastic liner.

http://pinterest.com/pin/308707749427035074/

The use of plastic brought on more discussion. If a plastic container has the recycling number 2, 4, or 5 on the bottom, it is generally considered safe. Again, this determination has to be individual and I would suggest doing additional research. The plastic containers that I own do not have any numbers on them.
Many good points were made regarding the use of plastics. Plastic is used to suppress weeds in all kinds of farming, organic too. Plastic is also used in the medical industry to save lives. I use and touch plastic everyday on my wheelchair. As an alternative in container gardening, I often use terracotta pots. They are heavy, possibly pose a great risk of back injury if lifted improperly, and there is no way of knowing what’s in the clay used to make them.

http://www.ehow.com/info_8307972_can-galvanized-tubs-grow-food.html
http://www.ehow.com/facts_8642668_plastic-safe-growing-vegetables.html#ixzz2Ane2pDIm
http://www.ehow.com/list_6017045_plastics-use-containers-grow-food_.html

http://www.ehow.com/how-does_5242374_safe-plastic-drinking-bottles_.html

As a somewhat conscientious consumer and as a gardener, I can only try to make the most informed decisions as possible. Whether a gardener or farmer chooses to pursue organic versus non-organic methods is simply their choice. I’ve grown plants organically, and I understand some of the challenges a farmer may face. My choice quite understandably may not be yours. I’ve seen people who run other pages chastised for choosing to eat butter over artificial products. I guess that goes along with the joy of free speech. Personally, I feel that if someone is that opposed they shouldn’t LIKE the page in the first place.


Anyway, as I continue in my quest to decipher some very misunderstood regulations regarding accessibility to community and educational gardens, I can’t help but feel that I’m also sometimes swimming in murky water. It is very similar to planning the height for a raised bed for one individual compared to planning for many. Height and reach ranges vary for children and adults, and a variety of heights are necessary in a true community garden. All considerations necessary must be made.


Knowing which regulations to reference is of extreme importance. One regulation may simply specify “firm and stable” for surface materials when they’re actually required to meet all three criteria, “firm, stable, and slip resistant”. There is a very BIG difference when choosing what to use for parking and an accessible route. Your best bet is to reference your state code as well as both the Accessible Play Area Guidelines, and the latest ADA/ABA Standards for reference. Your organization’s funding source is of huge importance too. I also recommend asking more than one individual. Sometimes a local or state official will simply cite the state code, and sometimes they may not reference all of that either.

Accessible Play Area Guidelines, http://www.access-board.gov/play/guide/guide.pdf
2010 ADA Standards for Accessible Design, http://www.ada.gov/2010ADAstandards_index.htm



In both public and community gardens, accessibility is a major issue for many. The law’s intent is not to create an undue hardship, but to provide equal access for people with disabilities. Whether you are privately or publicly funded by state, local or federal funds, including federal grants, you need to be aware of what you need to do and to do it to the fullest extent possible. No public garden is exempt.

Cahaba Lily, Dustin Gavin

The Standells, Dirty Water


Played once by the Grateful Dead, I washed My Hands in Muddy Water